Titus Update: In Children’s Hospital


After having the feeding tube for a few days, Titus ended up losing weight. After a bad little episode, our pediatricians sent us back home to pack for Arkansas Children’s Hospital. Our friends descended on us. It’ll take an entire post or two to explain how they served and what it did to my heart. I don’t know how we would have made it into the van with 4 boys all packed up without our community. I’ve done the ugly cry over and over since then, what it’s like to be on the other side of servitude.

Rich Mullins and King David sang us to Little Rock. All the black hills rolled, like following whole, slow notes on a full scale. I wondered about whether or not I hunger and thirst for righteousness. My sister-in-law met us at the ER and loaded up the big boys, one crying and buckling himself back into our van not wanting us to leave him. Another one has a birthday tomorrow, and my sister-in-law is taking so much of our burden.

The ER was truly entertaining, but I walked like a zombie. They took Titus’ blood and asked a bazillion questions and helped us articulate some of what’s been happening with Titus’ failure to thrive. We finally got a room at 3:30 AM. I slept 2 hours.

We met the doctor and fell in love. He’s a GI specialist and has a whole team. He and his partner are the doctors I was praying to somehow get in to see. Titus has thrown up several times over the past week, including tonight. We’re discouraged to watch him continue to lose weight in tiny increments, but his IV is giving him what he needs for now. The feeding tube is hit and miss.

Today (Tuesday) they seemed to wrap their heads around his mystery, and tomorrow they’ll run a number of tests. After midnight tonight he’s not allowed to eat. He’ll have a procedure at some point tomorrow (hopefully in the morning) to scope and biopsy his intestines and all that good stuff, and then he gets to have his very first colonoscopy. Poor buddy T.

I suspect that tomorrow will be a rough spot. After the procedure, he’ll be placed on the WHO Protocol for malnutrition.

Just now, we turned off the feed in the tube, because his body is saying No. I don’t know how to pray, but I see God. I am smiling. We have joy. I’ve hardly responded to a single message or comment, but so many have brought me to tears and shown us God’s love. I can’t tell if I’m being dramatic or if I’m not reacting strongly enough. Thank you for praying.

I know I was made for the night watch.

“Blessed are those who hunger and thirst for righteousness, for they shall be satisfied.”

Matthew 5:6

amberhaines
About me

103 Comments

LoveFeast
Reply July 24, 2012

Praying for Titus and your family that His peace that passes all understanding would rest on you tonight and that tomorrow would be full of answers.
Kristin

Kelly @ Love Well
Reply July 24, 2012

You aren't the only one on a night watch, friend. So many of us - nursing, cradling, yawning mothers - will be with you tonight. Praying, praying, praying.

Airs
Reply July 24, 2012

I'm so glad to know that God has you, and your community there has you, or I'd be on the road from AZ to AK by now.

I have heart words to tell you but that can wait for when you're rested. Praying the tests go easy and the answers come swiftly, love.

<3

Alexandra
Reply July 24, 2012

Praying for you, praying for you. ANd hoping you're not scared.

But I can't imagine not being.

I love your last line: that is mine, too. "Made for the night watch."

Corrina
Reply July 24, 2012

I'll be praying as I go to bed tonight. God is with you, of that I am confident. He will see you through. Praying for you big boys too. What they will learn watching you walk this road, and walking it too, will last for a lifetime. It's so difficult and they don't understand it all but I believe all they will see is Jesus as they look back in years to come.

Deidra
Reply July 24, 2012

Glad to see your words here - to read this update. I'm praying, too. With you. You're not alone in the night watch, you know? You're not alone.

Prudence
Reply July 24, 2012

Praying for Titus and your whole family. Praying that God gives answers questions and heals. I love you guys.

Sarah Bessey
Reply July 24, 2012

I'm here, too, darling, carrying you. I'll be fasting - food and Internet - tomorrow to pray for our Titus-boy. With you, with you, with you. Always. xoxo

Tsh @ Simple Mom
Reply July 24, 2012

I'm praying for you too, friend, and wishing I were closer to be another helping hand. Glad to see this update!

Lisa-Jo@thegypsymama
Reply July 24, 2012

Watching and praying with you Amber. We love you guys so much.

Renee Ronika Klug
Reply July 24, 2012

"But God..." I'll be praying for your Titus and you and your family.

kathy
Reply July 24, 2012

I'm a lurker who has been reading your journey through the shadows. Coming out. I am praying. May the God of ALL comfort meet you ALL tonight. Lord lay your hand on that sweet boy. Battle well mama.

Kristen@Chasing Blue Skies
Reply July 24, 2012

Sitting up with you beautiful mama {and that good man of yours, too}. Sitting with you, holding your hand, and praying hard. Love you so much.

Bonnie
Reply July 24, 2012

my prayers are with you and yours.... my heart is pounding!

Suzie
Reply July 24, 2012

I have 4 boys and my 4th is just 2 months older than Titus. My heart sinks for you and I'm being added to your prayer community. God is near.

Lindsay
Reply July 24, 2012

My heart is with you all. Praying for your family and precious little one. You are not alone.

Shelly Elston
Reply July 24, 2012

Blessings to you both and your sweet boy. I'll be remembering him to The One who knows and sees all and who can heal your baby. May you feel His comforting presence all around you in the coming hours.

Melissa
Reply July 25, 2012

Oh sister...so scary. We walked a very similar path with our boy this fall and my hands are sweating on your behalf. Oh Jesus, may your peace whisper louder than the IV beeping, may your love cover over the pain of the blood draws, may your joy medicate the fear.

Allie
Reply July 25, 2012

Many prayers for all of you .

Mollianne
Reply July 25, 2012

I just happened upon your post tonight in a steroid induced insomnia. I will use my sleeplessness to be with you, in spirit and in prayers, during your night watch tonight. God bless the boy and the doctors and his brothers and aunts and friends and cousins and his sweet daddy and precious mother.

Megan
Reply July 25, 2012

That sweet big boy of yours buckling himself back in the van, oh my heart! I know that ache well. I love our Arkansas Children's Hospital and hate that we've a need for such a thing.

Praying for peace, for answers, for God to be near. I love how you say that you don't know if you are being dramatic or not reacting strongly enough. I have felt that dichotomy too.

As a mama who has spent many a night next to my daughter's hospital bed, I found it best to live one day at a time and rest in God's presence and let people serve you. You need it, they want to help, and God gets the glory.

Megan
Reply July 25, 2012

That sweet big boy of yours buckling himself back in the van, oh my heart! I know that ache well. I love our Arkansas Children’s Hospital and hate that we’ve a need for such a thing.

Praying for peace, for answers, for God to be near. I love how you say that you don’t know if you are being dramatic or not reacting strongly enough. I have felt that dichotomy too.

As a mama who has spent many a night next to my daughter’s hospital bed, I found it best to live one day at a time and rest in God’s presence and let people serve you. You need it, they want to help, and God gets the glory.

Sarah Silvester
Reply July 25, 2012

Praying for you guys. Such a hard, horrible, thing to walk through, and one we have done with our friends. May you know the peace of God deep in your heart. xo

Tanya Marlow
Reply July 25, 2012

I'm in tears as I read - feeling for you in this horrible situation, aching for your beautiful boy to be made whole, feeling the scary uncertainty - and so humbled by your trust and tribute to God our saviour.

Praying for you across an ocean.

jimmie lee
Reply July 25, 2012

I've been drawn to your story through FB and Twitter. I am lifting everyone up in prayer. I pray that your little boy is healed and restored!

Linda B.
Reply July 25, 2012

I'm a lurker too normally but I'm here praying in the night watches for you and your family... I posted this at the bottom of your other post on the other page but I wanted to make sure you got it....

Here in the middle of the night my prayers are with you. Normally I'm the strong, giving one. Recently I walked through my own journey with cancer, and now it's my husband. It's hard when you really need help. But I've expereinced so much of God's incredible love and mercy poured out through my friends and complete strangers who have been there for me in ways I couldn't even imagine. I'm so thankful that you have friends who will climb right in bed with you... right in the midst of the pain and the fear and uncertainty that comes with a medical crisis... and they will be His hands and heart to you. Thank you for sharing your life with us in the midst of your journey. May God hold you all in the hollow of His hand, and give you and the doctors wisdom, and strength and a supernatural peace.

Robin Dance
Reply July 25, 2012

Amber, even in this broken you pen such beauty.

I've been eager for details, so thank you for *this* update which tells us so much. I've wondered about the older boys and this let's us know where they are (and SO thankful you have family who can allow you and Seth not to worry. As much.).

I'm glad to be in such a different time zone that when I'm praying for you and your baby, others might be sleeping. I wonder if you're watching or dreaming right now.

I love you and miss you so much, friend. {{hugs}}

Monica
Reply July 25, 2012

Oh, Amber, I am just now catching up on your and baby Titus. I am praying for you...for your strength and for your faith to be strong in this.

Jessica
Reply July 25, 2012

Praying for you all. Praying you'll continue to see the goodness of God and feel his presence, for answers, and peace and comfort over your whole family.

Carmen Lillian
Reply July 25, 2012

Praying.

Donna
Reply July 25, 2012

Praying peace for your family, healing for Titus, wisdom for the doctors and an easy solution for your little guy to gain weight.

Lindsey Hartz
Reply July 25, 2012

Oh honey, we are praying for peace and protection over your precious family.

Kristen
Reply July 25, 2012

Praying girl. We love y'all and are asking Jesus to hold you.

suzannah {so much shouting, so much laughter}
Reply July 25, 2012

praying, amber. there's nothing quite so hard on a parent as a hospital-sick babe. peace and so much healing to you and yours.

Heather
Reply July 25, 2012

Blessings on the many ways God is working that you see. And blessings on the work of God that you do not see. Grace and peace for every minute ahead of you. God is near.

Fiona
Reply July 25, 2012

Loves and prayers.

Beth Anne
Reply July 25, 2012

Thoughts, prayers, hope.

SimplyDarlene
Reply July 25, 2012

Miss Amber and family,

What must it look like from God's vantage point to see all these prayers flame and collide as they reach heavenward for you all!

In Christ,
Blessings.

QuatroMama
Reply July 25, 2012

Praying that a sweet peace from Jesus will encamp around you all today and the days that follow. You are loved. You are all so very loved.

HopefulLeigh
Reply July 25, 2012

I haven't ceased praying for you guys the last couple of weeks. Praying for God's mercy in this situation, wisdom for the doctors, and for Titus's sweet spirit through it all. Love you, friend.

Casee
Reply July 25, 2012

Praying deep and hard this morning for you, sister. May God shower you with answers of truth and strength and steadfastness to power through the steps. Love and healing light all over your whole family and your sweet baby T.

Debbie Phillips
Reply July 25, 2012

Praying God's mercies over sweet Titus and over you... That God will provide what you need moment-by-moment... That you will feel His comfort and His strength... That the doctors and nurses will have wisdom in his care.... And that His mighty healing power will overtake Titus's little body, giving him nutrition and strength. Thank you , Jesus.

shelly
Reply July 25, 2012

much love, my friend. I will pray for all those sweet babies of yours.

norma
Reply July 25, 2012

Hope you get answers soon sweet girl. Take care of yourself so you can take care of Titus.

Lindsey Nobles
Reply July 25, 2012

Love you guys!

Selena M.B.
Reply July 25, 2012

Mere words cannot express the ways in which I could support you. To comfort and console you. Your community sounds amazing and I shall continue my smudging and deep meditated praying to our creator. Brightest Blessings, oh, Titus - you dear, sweet boy. We continue to lift you up high.

Rhonda Greenway
Reply July 25, 2012

Sweet Amber.....always REAL to the bone. I love that about you. I wish I could make this go away. I am crying out to Jesus for you and your Titus. I remember feeling something similar when I had Garrett and he was so small and so frail and I couldn't fix it. I was mad that I had "done it all right" when others did not take care of themselves while pregnant and had perfectly normal healthy babies. I wrestled with God for a while on that one. Keep leaning into the ONE who holds it all together. When you come home with you stronger, healthier boy, please let me know and I'll bring a meal over. LOVE YOU!!

Lisa @ Crazy Adventures in Parenting
Reply July 25, 2012

Praying, sweetheart.

René
Reply July 25, 2012

Oh dear heart- you are not crying alone, you are not alone at any moment. Praying. You are being held. All of you.

Adrienne
Reply July 25, 2012

Amber, I ran across you from an RT on Twitter. Please know you have a sister praying with you in Indiana. May you feel the peace of God's presence as you continue on this journey.

Alli
Reply July 25, 2012

Praying.

Kim
Reply July 25, 2012

Oh sweet Amber. I am praying for all of you. Praying, praying, praying.

RachelGronwald
Reply July 25, 2012

Amber, Adam and I have been heartsick and feeling the depth of "carrying each others burdens" with you guys the past few weeks. I know we haven't been able to talk more than a tiny "hi" at church on Sunday. But I want you to know how much I am present with you right now. As I lay here in bed with my Emma napping, I am holding your hand and crying with you and telling you it's ok that you don't know how to feel right now. And even though I feel like I hardly know you.. I feel like I don't jus hardly know you. And I think that's the beauty of this whole being His body thing. Sister, our dad is with you. And Seth. And Titus. And His will be done- on earth, like in heaven. Love you guys.

nancypantsgirl
Reply July 25, 2012

You are not being dramatic, that's for sure.

"He tends his flock like a shepherd: He gathers the lambs in his arms and carries them close to his heart; he gently leads those that have young." Isaiah 40:11

Ann Kroeker
Reply July 25, 2012

I read with deep heartache and immediate prayers for you, for Seth, for Titus.

Nacole Simmons
Reply July 25, 2012

oh, goodness girl, im aching with you and holding your hand and *praying*.

    Nacole Simmons
    Reply August 3, 2012

    Oops...I noticed that I input the wrong blog address here on The Runamuck, and it is bringing up someone who isn't me when you click...*This* is the real me, not the link above...

Karen
Reply July 25, 2012

Just to let you know that Mike and I are so sad for you all and praying for Titus and your precious family. You are not alone, ever, even for a single second - you are surrounded by a huge cloud of our heavenly Father, your close friends, your physical family, your church family, hosts of angels, and those lifting you up that have never met you or Titus. We love you and are here for you in whatever ways we can help.

Bryan Riley
Reply July 25, 2012

Praying for you all and that you will continue to drink deeply of the Spirit's living water as everything around you must surely feel like the drought of summer.

Ashleigh Baker
Reply July 25, 2012

I do not even have words with which to reply, dear one. I hold thoughts of you and your menfolk close, every moment. Lifting you up.

Shaunie Friday
Reply July 25, 2012

Amber, God is on a roll of miracle-working!! I have just witnessed a miracle I never dreamed I would see http://upthesunbeam.blogspot.com/2012/07/when-lazarus-comes-home.html! You have every reason to keep your confidence in God and His goodness!! He is with you and your family no matter what happens! Hang in there and know that He's got this!!

    Ann Cotilard
    Reply July 27, 2012

    I will send prayers to you Amber. I hope Titus will recover soon.

Elizabeth
Reply July 25, 2012

I am praying for you Amber, and though I don't know you, I know your mother's heart. And I ache for you. So I will pray often and fervently as a sister in Christ. And I will hold on to hope for complete healing for Titus and discernment for the team of Doctor's.

May God give you strength and peace. And may you see Jesus in those serving you and praying along side you.

Your sister in Christ,
Elizabeth

Corinne
Reply July 25, 2012

Praying...sending much love...

Judy
Reply July 25, 2012

I first followed a link from Ann Voskamp' blog a week or so ago - just came back to check on any updates on Titus - anticipating some positive news perhaps...but this... so hard.

I have a friend, Lois, who has lived in a dark place a long time - her husband, a godly, wise Christian pastor, was left with massive memory loss and little capacity for short term memory acquisition after a heart attack seven years ago. Together with her teenage daughters she wrote this song of trust - acknowledging the fear she experiences in their reality AND God's faithfulness in the midst of it. It is called, 'All Right' and comes out of her days at the hospital at a time when she did not know if her husband Paul would survive. She sensed God's assurance, that He was sufficient - "It's gonna be alright," meant just that - whatever the outcome, He would be faithful. Maybe her lyrics can be the prayer you cannot even formulate in this exhausting and confusing time. May they bless you.

I lie awake at night unable to shut my eyes.
I hear your voice that says to me, "It's gonna be all right."

Feelings are feelings, reality's reality
God above understands our humanity.
It's gonna be all right.

And though I don't know why things happen the way they do
I know your faithful to your word. It's gonna see me through.

Feelings are feelings...

And though the way may seem so long, I'm guided by the light
Your word of truth has power to keep me strong.
Safe in the darkest night.
And though I may not understand, I know you'll lead the way.
I'll trust in you alone to take my hand into the break of day.

Feelings are feelings...

Holding you in prayer - that God will give you comfort, strength and hope.

Kay Glass
Reply July 25, 2012

Praying in Alabama! Amber you have the strength and the faith to move mountains! Mom and Dad (JC and Charline) send their love and prayers too!

Handsfull
Reply July 25, 2012

Sweet Amber... I am so glad you have love and support in this hard place.
I don't have any other words, except to say that I'm praying. When I wake in the night and can't sleep, I pray for Titus and Amber. When I'm in the shower and have 10 (almost) uninterrupted minutes to think, I pray for Titus and Amber. And when I give my children food through the day, I will be praying for Titus and Amber.
Lots of love and hope and answers and grace and weight gain!

Sharon Mouk
Reply July 25, 2012

My sweet, precious Amber! Love, hugs, and prayers are being rained down on you from all directions; you inspire and amaze me. Know that you are loved.

Linda
Reply July 25, 2012

Praying Amber - for all of you.

Cheri
Reply July 25, 2012

All I can say is -I love you and hurt for you. Praying peace for you in the middle of this storm. Hugs.

Melissa
Reply July 25, 2012

Was sent here by a mutual friend who knows the struggle I went through with both of my children and failure to thrive and just wanted to let you know it does get better, especially once you finally have a knowledgeable GI on your side (which I was very happy to read in this latest post of yours). My daughter was wearing 6-12 mos clothes at age 2.5 and now at age 5.5 is average weight and height for the first time in her life. My son, who is almost 2 is still listed as failure to thrive, but finally had 2 weight checks in a row where he gained enough weight to show that he is following a curve, albeit an inch below the 3rd percentile line and his height jumped crazily up to the 34th percentile. I will be continuing to follow you and hope to see that you have some answers soon that will get Titus on the right track.

Shannon
Reply July 25, 2012

Sweet girl, I'm just sending you all the love I can. Praying for peace and rest for you and Seth and for unraveled mysteries for sweet baby Titus. You all are precious in His sight, and He is with you.

Vicki Chapman
Reply July 25, 2012

Praying for Titus and his Doctors, for wisdom to know how to treat Titus. Praying rest of the family fir God's peace that passes all understanding.

Laurie
Reply July 25, 2012

Prayers for your precious family and sweet Titus!

Brooke Myers Baird
Reply July 25, 2012

We are praying with you. We call upon Jehovah Rapha, our healer, to bring healing to Titus. We ask Jehovah Shammah to surround each of you, for He is our ever present Lord God.

Connie @raise your eyes
Reply July 25, 2012

Praying that someday you will tell Titus' children about this time when their daddy was little and they'll laugh incredulous because he'll be so big then...

Mae Mouk
Reply July 25, 2012

Lady, I am praying for you and yours, as is the rest of my crew. We love you very, very much. You are absolutely not being too dramatic -- trust your intuition and God's grace.

Victoria
Reply July 26, 2012

Prayers being sent to Heaven for you whole family!!

Kim
Reply July 26, 2012

I am with you. I am praying. Even now, God hears all.

Bobbie
Reply July 26, 2012

Prayers are with you and so is God.

Sarah
Reply July 26, 2012

prayers, Amber, for you and Titus and Seth and your whole family. please keep us posted.

Debbie
Reply July 26, 2012

Praying for Titus. Praying for all of you. Praying for the sweet brother whose birthday is surrounded with uncertainty in his family. You are in such a wonderful hospital. They are God's hands touching Titus.

MaryLindsey
Reply July 26, 2012

Praying for Titus and you and your family.

Alicia Brooks
Reply July 26, 2012

Praying for all of you. Much Love, The Brooks

L.L. Barkat
Reply July 26, 2012

"I know I was made for the night watch."

Just that. No words.

Melinda Thompson
Reply July 26, 2012

Amber, I am praying hard for little Titus and your whole family. For peace, joy and healing. We love y'all so much. Children's is an amazing place. Our experience there was wonderful in the middle of our pain. Wish I were there to give you a huge hug right now. Please let me know if there is anything you guys need.

Kimberlee Conway Ireton
Reply July 26, 2012

Hi Amber,

I work with Seth at Tweetspeak. Please know that I am praying for you and him and Titus and your other boys. For a diagnosis. For a plan to return Titus to health. For continued strength and support in the midst of chaos. For you and Seth to be able to lean hard on each other in these scary days and together lean into God.

Warmly,
Kimberlee

rain
Reply July 26, 2012

your son will not only live, but thrive.

Jackie
Reply July 26, 2012

I too have held the little one with the nasal feeding tube and pleaded with God to make this little one grow strong. Praying that prayer again tonight for Titus and for peace and strength for you as you wait.

2 Corithians 1:
8 We do not want you to be uninformed, brothers and sisters,[a] about the troubles we experienced in the province of Asia. We were under great pressure, far beyond our ability to endure, so that we despaired of life itself. 9 Indeed, we felt we had received the sentence of death. But this happened that we might not rely on ourselves but on God, who raises the dead. 10 He has delivered us from such a deadly peril, and he will deliver us again. On him we have set our hope that he will continue to deliver us, 11 as you help us by your prayers. Then many will give thanks on our behalf for the gracious favor granted us in answer to the prayers of many.

suzy
Reply July 26, 2012

You don't know me but I have often read your words and been so inspired.
I want to say that I will be praying for you everyday.
God Bless you.
xx

elizabeth
Reply July 27, 2012

We spent a week at Children's in Little Rock, two years ago. Worst week of my life.

Peace & quick answers to you. :)

Kyndra
Reply July 27, 2012

Having been there when our now 2.5 year old son was 2.5 months old my prayers are with you. Our experience of pediatric GI docs was that they are amazing detectives with a worldwide body of doctors to call on. I know our GI docs went online and posted information about our sons symptoms in order to learn who had seen a similar condition and what they had done for it (he had a very rare congenital pancreatic cyst).

It is so hard to see our babies ill and know that no one knows what is going on, but the Lord is able to give grace and peace even then. I know this is true because He granted those them to me. I will pray for you and your family ...Love in Christ...K

Chloe
Reply July 27, 2012

I don't know you, stumbled on your site from A Holy Experience. Still, we are sisters in Christ and both have mother-hearts beating within. I can't imagine how scary the walk is right now, but will lift you and yours before our Lord.

Chloe

Megan
Reply July 27, 2012

Amber and Seth--
Something's wrong with my reader, and I've been thinking about you and wondering how you all are for months. I will PRAY for Titus, for full restoration of his little body, for continued peace and God's presence. And for the three olders to feel it as well. Love and God's strength to you all,
Megan Schoff
Kansas City, KS

    Megan
    Reply July 27, 2012

    Megan,

    How do you know the Haines? What a small world!

    Megan Daniel (Chris' wife)

sarah
Reply July 27, 2012

Hi, I don't know you, but I found your website from A Holy Experience. My heart goes out to your family and cannot fathom what you are having to go through right now with your sweet Titus. Our little daughter started to loose weight significantly around age 1. We found out hers was because of a very strong allergy to dairy (as well as nuts, eggs, wheat). We were thankful to find out that information from an allergist and once those foods were removed, she started to gain again. I will pray for little Titus. I will pray for answers and clarity and peace through it all.
sarah

Anna
Reply July 28, 2012

Hi, I found your post at A Holy Experience. I was sitting right where you are five years ago. I am a mom of 4 boys. Doctors told us at about 6 months after weaning him that our 2nd son was "failing to thrive". Those words make you feel horrible as a mother. We went through months of trying to "figure out" what was causing him to vomit anytime he had food. We are from Georgia and eventually went to Vanderbilt Children's Hospital in Nashville and they diagnosed him with Eosinophilic Esophogitus (EE). He also had a scope and colonoscopy at 9 months. After treatment with a very special formula called Elecare for several months and a special diet he seemed to be doing better. He is great now and growing and will be 6 next week. I tell you my story only to encourage you that even though you are in the valley right now, God will never leave you nor forsake you or your sweet little one. The times when answers of so few and far between are the hardest. Stay on your knees with your husband and your prayers will be answered. Praying for Titus and you tonight.
Anna
Isaiah 43:2
"When you pass through the waters , I will be with you; and when you pass through the rivers, they will not sweep over you. When you walk through the fire, you will not be burned; the flames will not set you ablaze."

Diana Trautwein
Reply July 30, 2012

Oh, sweet Amber. And blessed Titus. SO sorry to read of this struggle - and sorry that a computer meltdown kept me away from this knowledge until late on this Sunday night. Prayers for you all - hoping you've found answers by now. So much love to you.

julia dansby
Reply August 2, 2012

PRAYING! Have to ask. Have the doctors looked into CELIAC DISEASE? Try to push for a lab test. Worth mentioning. Check out rachelmariemartin.blogspot.com - her son was diagnosed around a year with celiac disease and sounds similar to some of Titus' symptoms. Lifting you up in prayer. Oh my. HE is there with you.

Wendy
Reply August 3, 2012

I am praying for your family.

Karen Beach
Reply August 3, 2012

I am praying for little Titus, having had numerous digestive problems, especially the colonoscopy. UGH! You are such an inspiration, and I have 3 boys, instead of 4! I am praying specifically for peace and courage for you and wisdom and God's leading for the doctors and all the medical teams. I am asking for a miracle for Titus, no matter the way it is presented. In Jesus's precious name, Karen

Debra Baldwin
Reply August 7, 2012

Wishing Amber will get okay now and can get out on the hospital already. We will pray for Titus condition.

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